Our pharmacists and dietitians work together to evaluate each consumer’s nutrition with their goals in mind. The team monitors your response to therapy, offering disease-specific nutrition education and management.
Nutrition nurse navigators provide consumer- and family-centered care during the transition to ThriveRx and throughout therapy. This includes comprehensive instruction on parenteral nutrition administration. To improve quality of life, our nurses collaborate with consumers’ entire medical teams.
Education & Training
- Administering therapy
- Central line care
- Complication monitoring
- Infusion pump and supply selection
- Empowering consumer self-care
- Ongoing support, including annual home visits
- Serving as a primary contact to coordinate care and resolve concerns
- Monitoring hospital admissions and developing care plans to keep consumers at home
- Intervention program for central line–associated bloodstream infections
Consumer Advocacy Team
The consumer advocacy team supports consumers on home parenteral and enteral nutrition (HPEN). The team’s extensive knowledge, training, and life experiences empower you and your family and help foster independence.
Consumer advocates can help you with:
- Daily therapy challenges
- Educational tips, tools, and webinars
- Guidance in transitioning care to your child
- Medical team integration
- Non-profit organization access
- Travel assistance
Your advocate will guide you through your journey on nutrition support. You can contact your advocate any time with questions or concerns. Because our advocates are either caregivers or on HPEN themselves, they understand how to prepare for and overcome the challenges of nutrition support.
Meet the Advocacy Team
Ann WeaverSenior Consumer Advocate
Ann’s son Tim has short bowel syndrome due to total colonic Hirschsprung’s disease. She is passionate about awareness, education, and advocacy. Ann is the Illinois state leader for NORD and has been involved with the Oley Foundation. She is a recipient of the Oley Lenore Heaphey Grassroots Education Award, as well as the Lyn Howard Nutrition Support Consumer Advocacy Award from ASPEN.
Ali BeckwithConsumer Advocate
Ali has two children, Alex and Madelyn, with mitochondrial disease. Alex has an ileostomy and has been on parenteral and enteral nutrition since 2008. Madelyn is on enteral nutrition. Ali and Alex are ambassadors for the Children’s Miracle Network Hospitals. Ali is also on their hospital’s family advisory and CLABSI councils.
Gaby LunaConsumer Advocate
Gaby’s son was born with gastroschisis, which resulted in short bowel syndrome, and he has been on enteral and total parenteral nutrition since birth. A well-known advocate for families living with short bowel syndrome and gastroschisis, Gaby is passionate about helping others and often sets up meet and greets in the community. Gaby also serves as the New England district manager for Avery’s Angels Gastroschisis Foundation.
Jayme ScaliConsumer Advocate
Jayme’s daughter Olivia has complex medical needs resulting in parenteral nutrition and IV hydration. Jayme is experienced in the complexity of traveling while on nutrition support—including internationally. She advocates for central line care awareness within home care, as well as educational accommodations. Jayme enjoys providing support to others on nutrition support.
Marlo SantagataConsumer Advocate
Marlo has short bowel syndrome due to necrotizing enterocolitis (NEC) at birth. She was later diagnosed with Crohn’s disease resulting in an ileostomy. As a child, Marlo received TPN and is now on IV hydration to manage her high-output ostomy. Marlo has a master’s degree in school psychology and has expertise with Individualized Education Programs (IEP), including 504 plans. She enjoys helping others improve their quality of life.
Tara SmithConsumer Advocate
Tara’s daughter Aleah has short bowel syndrome, requiring nutrition support for most of her life. Tara has experience with central lines and feeding tubes. She has served as an Oley Foundation ambassador, representing the foundation at industry events. She also leads a support group for nutrition support consumers and their families.