Our pharmacists and dietitians work together to evaluate each consumer’s nutrition with their goals in mind. The team monitors your response to therapy, offering disease-specific nutrition education and management.
Our experienced nurses provide extensive education to make sure you will be comfortable with your nutrition therapy. They also coordinate your care and communicate with your medical team. Our nurse liaisons stay up to date with the latest central line care guidelines to minimize your risk of infection.
Consumer Advocacy Team
The consumer advocacy team supports consumers on home parenteral and enteral nutrition (HPEN). The team’s extensive knowledge, training, and life experiences empower you and your family and help foster independence.
Consumer advocates can help you with:
- Daily therapy challenges
- Educational tips, tools, and webinars
- Guidance in transitioning care to your child
- Medical team integration
- Non-profit organization access
- Travel assistance
Your advocate will guide you through your journey on nutrition support. You can contact your advocate any time with questions or concerns. Because our advocates are either caregivers or on HPEN themselves, they understand how to prepare for and overcome the challenges of nutrition support.
Meet the Advocacy Team
Ann WeaverSenior Consumer Advocate
Ann’s son Tim has short bowel syndrome due to total colonic Hirschsprung’s disease. She is passionate about awareness, education, and advocacy. Ann is the Illinois state leader for NORD and has been involved with the Oley Foundation. She is a recipient of the Oley Lenore Heaphey Grassroots Education Award, as well as the Lyn Howard Nutrition Support Consumer Advocacy Award from ASPEN.
Christine GrichConsumer Advocate
Christine’s son Jakob has depended on nutrition support for his chronic intestinal pseudo-obstruction and cyclic vomiting syndrome. Also a part-time nurse, Christine has many years of experience with G-tubes, J-tubes, and central line care.
Meagan GloverConsumer Advocate
Meagan’s son Camden has short bowel syndrome due to intestinal malrotation and volvulus. Now a toddler, he has had multiple ostomies and relies on home parenteral and enteral nutrition. Through the highs and lows since Camden’s birth, Meagan and her family have remained committed to an active, positive lifestyle.
Michelle GuinigundoReimbursement Advocate
Michelle has Crohn’s disease, which resulted in an ileostomy and short bowel syndrome (SBS). She has weaned off home parenteral nutrition but still receives daily IV hydration and follows the SBS diet. She enjoys reading, exercising, and cooking—just as she did before SBS.
Stephanie TorresConsumer Advocate
Stephanie has gastroparesis and intestinal dysmotility resulting in parenteral nutrition. She organizes awareness campaigns to support gastroparesis research. Though eating can be a challenge, Stephanie enjoys cooking and creating easy-to-digest recipes. Her active lifestyle includes hiking and yoga.
Tara SmithConsumer Advocate
Tara’s daughter Aleah has short bowel syndrome, requiring nutrition support for most of her life. Tara has experience with central lines and feeding tubes. She has served as an Oley Foundation ambassador, representing the foundation at industry events. She also leads a support group for nutrition support consumers and their families.
Victoria DeLanoConsumer Advocate
Victoria’s son James has mitochondrial disease, eosinophilic gastroenteritis, and dysautonomia. She and her family juggle the challenges of home parenteral nutrition with their on-the-go lifestyle. Beyond supporting consumers new to their diagnoses, Victoria advocates for coverage, research funding, and school integration.